The WNY Friends of the LAM Foundation was founded in 2005 by the McKenna Family after receiving some devastating news. At the young age of 25, Katie McKenna was diagnosed with Lymphangiomioliomatosis (LAM).
WHAT IS LAM?
LAM is a rare, progressive lung disease that affects women almost exclusively, usually striking during the prime of their life.Although the medical and scientific community is getting closer to finding an effective treatment, there is currently no cure for this relentless disease.
WHAT IS OUR MISSION?
The mission on the WNY Friends of the LAM Foundation’s is two-fold:
1.) Raise awareness – Since LAM is so rare (there are less than 2,000 known cases) it’s critical that there is constant education for not only women, but for the medical community at large.
2.) Raise funds – For uncommon diseases like LAM, funding is limited. The WNY friends of the LAM Foundation raises money, all of which is donated to the national LAM Foundation, an organization that focuses on patient advocacy and directing funds to LAM research.
HOW CAN YOU HELP?
The WNY Friends of the LAM Foundation relies on the generosity of family, friends and LAM supporters and with that support, the local foundation has raised more than $100,000 to date. Over the past eleven years, a majority of those funds have been raised through our fundraiser, “An Evening of Hope” held every year in February. You can help by spreading the word about what LAM is, and attending this year’s “An Evening of Hope.”
We hope you will join us in the fight to help cure LAM.
To learn more about LAM and the National LAM Foundation, visit www.thelamfoundation.org